Pompe Disease: All You Should Know About This Genetic Disorder
Pompe Disease: All You Should Know About This Genetic Disorder
Mar 3, 2022
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143K views · 365 reactions | Pompe disease is a rare, progressive...
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143K views · 365 reactions | Pompe disease is a rare, progressive...
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🎥 From 2019 to Today — Our Pompe Journey In 2019, the news shared our story about starting a special diet for Leo — and how Mayo Clinic began studying it. 💪 Six years later, we’ve made HUGE progress! This work is now helping more patients than ever, especially Leo. 🧬 Every Pompe patient’s diet is unique — based on your specific gene mutation and GAA enzyme level. But the goal is the same: slow disease progression and protect muscle health.🍳 And it can start small — right in your own kitchen!
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